
We're finally outpatient, at the Puesta Del Sol apartments about 15 minutes from the hospital. We've been here since the 23rd of February. We have been going to the clinic every day for about 6 hours, now we get the weekends off. Soon we'll be going about 4 times a week. Tati is only needing platelets once or twice a week and she hasn't had red blood cell transfusions for almost 3 weeks! Her dialysis is going well, she gets 4 hours off during the day to play, sit up, tummy time, and bathe. Her feeding tube has been out for about a week, she isn't eating enough and having trouble keeping it down, so it may need to go back in. I got to place her ng tube in the hospital before we were discharged, but then she vomited it out at home and I was unable to get it back in... Tati has 3 bottom teeth now and starting to grow hair, she is getting stronger (she's able to sit up with support and can hold her head up laying down for a few seconds) Tati will be one year on the 25th and we are anticipating a big celebration!


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